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We believe that adults with ID are experts in their own health, and we listen to them first.
In our community-engaged research, we partner with adults with ID to learn more about their health and wellbeing.
These partnerships improve our research.
What’s New?
September 15 – October 15th is Spanish Heritage Month
The health of Spanish-speaking communities is important and often understudied.
The OSU Nisonger RRTC project is working to learn more about the health of Spanish speaking individuals with intellectual disability (ID) in the U.S. through the “Count Study”; https://rrtcnisonger.org/what-we-do/count-study-details/
We are working together with Utah State University, which is another University Center of Excellence in Developmental Disabilities (UCEDD), to translate the Diagnostic Interview for Adolescents and Adults with Developmental Disabilities (DIAAID) measure into Spanish.
This interview helps to improve accessibility in self-reporting health for those with ID.
An entirely Spanish version of this interview will greatly improve the opportunity for individuals with ID and their support persons/family members who understand and speak Spanish as their first language to use their voice.
Stay tuned for a flier recruiting Spanish-speaking families!
La salud de las comunidades hispanohablantes es muy importante y, con frecuencia, no ha sido suficientemente estudiada.
El proyecto OSU Nisonger RRTC está trabajando para conocer mejor la salud de las personas hispanohablantes con discapacidad intelectual (DI) en Estados Unidos a través del “Count Study”: https://rrtcnisonger.org/what-we-do/count-study-details/
Estamos colaborando con Utah State University, que también es un Centro Universitario de Excelencia en Discapacidades del Desarrollo (UCEDD), para traducir al español el instrumento Entrevista diagnóstica para adolescentes y adultos con discapacidades del desarrollo (DIAAID – siglas en Ingles).
Esta entrevista ayuda a mejorar el acceso y las oportunidades para que las personas con DI puedan proporcionar información sobre su propia salud.
Contar con una versión completamente en español de esta entrevista mejorará significativamente la oportunidad a las personas con DI, así como de sus familiares y personas de apoyo que tienen el español como primer idioma, para expresar sus necesidades, experiencias y perspectivas sobre su salud.
¡Estèn atentos a un volante para invitar familias hispanohablantes!
Interested in Participating in a Research Study?
New Open Access Paper Submitted to the Journal of Developmental and Physical Disabilities!
Nearly half of adults with profound disabilities experience mental ill health; yet detection of mental distress remains a significant challenge in this population. We present a literature-informed theoretical discussion of current knowledge regarding assessing mental health in individuals with profound disabilities. We discuss several genetic, temperament, and experiential vulnerabilities that increase the risk and complicate the detection of mental health conditions in this population, then describe promising frameworks and future directions for improving detection of mental distress in individuals with profound disabilities. We highlight that current assessment strategies, such as behavioral observation and informant report, are useful but clearly inadequate.
Citation:
New Open Access Paper Submitted to the Journal of Developmental and Physical Disabilities!
