Home

Our research
focuses on adults
with intellectual
disability (ID)

Photo Credit: Julia Kranz, OSU

We believe that adults with ID are experts in their own health, and we listen to them first. 

In our community-engaged research, we partner with adults with ID to learn more about their health and wellbeing. 

These partnerships improve our research.

What’s New?

Special Olympics International (SOI) is partnering with The Ohio State University (OSU) Nisonger Center to support the work of our Rehabilitation Research and Training Center (RRTC) on Health and Function called Can You Hear Us Now?.

The goal of this project is to conduct research to improve the health and quality of life for adults with intellectual disability (ID). Starting in 2024, SOI recruited six state Special Olympics (SO) programs to engage their athletes with the Count Study, a national study designed to count how many adults with ID have mental health concerns. Understanding how common mental health concerns are among adults with ID is a key step in providing services to those who need them most.

In previous announcements, we acknowledged SO Indiana, SO Ohio, and SO Tennessee for their study recruitment efforts to date.

On the heels of these other states, SO Wisconsin has made significant progress in study recruitment as of August 2026!

Brittany Hoegh, Senior Director of Health Program from SO Wisconsin (SOWI), shared which study recruitment strategy proved most successful. At SOWI’s State Spring Games in April 2026, SOWI interns shared Count Study details with families. Interested families signed up at the table using paper copies of the official study intake survey. Every family that signed up was able to choose from select incentive items at the table. Afterwards, SO staff used these recorded responses to complete the official intake survey online. This strategy streamlined getting athlete’s information to the OSU researchers. 

The OSU researchers are grateful to the six state SO programs for their ongoing efforts to educate others about the study so that more athletes with ID will have their voices heard about their health and quality of life.

Interested in Participating in a Research Study?

New Open Access Paper Submitted to the Journal of Developmental and Physical Disabilities!

Nearly half of adults with profound disabilities experience mental ill health; yet detection of mental distress remains a significant challenge in this population. We present a literature-informed theoretical discussion of current knowledge regarding assessing mental health in individuals with profound disabilities. We discuss several genetic, temperament, and experiential vulnerabilities that increase the risk and complicate the detection of mental health conditions in this population, then describe promising frameworks and future directions for improving detection of mental distress in individuals with profound disabilities. We highlight that current assessment strategies, such as behavioral observation and informant report, are useful but clearly inadequate.

We then consider how new neuroscience-based frameworks for understanding mental health, such as the Research Domain Criteria, may open windows into the mental world of individuals with profound disabilities. The neuroscience revolution has contributed to our understanding of mental health, but these approaches have been slow to trickle down to individuals with profound disabilities. To advance our understanding of mental distress in profound disabilities, it is essential, first, that individuals with intellectual disability are included in research on neurobiological, behavioral, genetic, and psychological markers of mental illness. Second, funding must be directed to exploring mental distress in individuals with profound disabilities. Finally, the promise of emerging technologies, such as Augmentative and Alternative Communication devices and automatic machine learning, in the assessment of mental distress in individuals with profound disabilities should be explored.
 

Citation:
Walton, K.M., Bacherini, A., Lowery, T., Munir, A., Cobranchi, C., Barnhill, L.J., Havercamp, S.M., and the Nisonger RRTC on Health and Function (2025). Current methods and future prospects in the detection of mental distress in individuals with profound intellectual and multiple disabilities. Journal of Developmental and Physical Disabilities. https://doi.org/10.1007/s10882-025-10036-6
► RRTC YouTube Channel

See All RRTC Videos Here

Follow the arrow to see the full playlist

► RRTC YouTube Channel
► RRTC YouTube Channel

See All RRTC Videos Here

► RRTC YouTube Channel

Interested in being part of a research study?

If you would like to be a part of a research study, please click the button below to reach out.